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  • Anavex2-73 | Rett Syndrome Study

    HOME ABOUT RETT SYNDROME ABOUT CLINICAL STUDIES INTERESTED? SOCIAL MEDIA HOME ABOUT RETT SYNDROME Rett Syndrome a rare genetic neurological disorder that is first recognized in infancy and primarily occurs in girls, but there are rare cases reported in boys as well. Rett syndrome leads to severe impairments, affecting nearly every aspect of the person's life. Rare, but not alone Rett syndrome is a rare disease that impacts about 350,000 people worldwide and about 11,000 people in the United States. Rett syndrome is the second most common cause of severe intellectual disability in females and during its period of developmental regression, a substantial proportion of affected individuals meet diagnostic criteria for autism spectrum disorder (ASD). See if your loved one qualifies About Clinical Studies Clinical research studies (also called clinical trials) are critical for identifying new ways of treating medical conditions and diseases. All therapeutics must be tested in clinical research studies before they can be approved and prescribed to people. Inquire ABOUT CLINICAL STUDIES Interested? Clinical research studies can help advance the understanding of a disease. All clinical research studies rely on individuals volunteering to participate. By joining the ANAVEX2-73 Rett Syndrome study your loved one has the opportunity to help advance clinical research into Rett syndrome. See if your loved one qualifies INTERESTED? By joining a clinical study you might have the opportunity to: Better understand your or your loved one's condition Have your loved one's condition closely monitored Help others living with Rett syndrome in the future Inquire SOCIAL MEDIA @AnavexLifeSci Back to Top Cookie Policy Privacy Policy Search Site © 2021-2024. All Rights Reserved. Proudly developed and managed by Rare Love Ventures LLC

  • Refer A Friend | Rett syndrome Trial

    Know someone who may be interested? Share the clinical study with a friend or family member. Your details: First Name Your Email Their details: Referral Name Referral Email Submit Thanks for submitting! An email will be sent to your friend or family member.

  • Privacy Policy | Rett syndrome Trial

    Website Privacy Policy This Privacy Policy applies to the ANAVEX2-73-RS-002 Study Website developed and maintained by Rare Love Ventures on behalf of the study sponsor. You are responsible for carefully reading this Privacy Policy in its entirety. ​ Rare Love Ventures understands that privacy is important to you. The information that we collect about you from the ANAVEX2-73-RS-002 Study Website will be maintained and used in accordance with this Privacy Policy and applicable laws, rules and regulations. ​ Reference to “Rare Love” means Rare Love Ventures, 10 Schalks Crossing Rd. Suite 501-283, Plainsboro, New Jersey 08536 United States of America, including any company that Rare Love Ventures controls (for example, a subsidiary of Rare Love Ventures). Rare Love may share information among its subsidiaries, and such information shall be protected in accordance with the terms of this Privacy Policy. Top of Page Summary of Information we collect If you use our Website, the only information we collect will be: ​ information through the use of Cookies, information collected in Web Logs or in case of the use of the “Refer a Friend” functionality, temporarily the information requested by the “Refer a Friend” form. Personal Data or Personally Identifiable Information Personal Data or Personally Identifiable Information is information that can be traced back to an individual. Examples of Personal Data or Personally Identifiable Information include your name, home address, telephone number, email address, date of birth, and any other information that is linked to this identifying information. "Refer a Friend" Functionality This ANAVEX2-73-RS-002 Study Website uses a contact form connected to Jotforms to allow you to share this ANAVEX2-73-RS-002 Study Website with a friend. This form temporarily collects your contact details and the contact details of the friend for the purpose to share the ANAVEX2-73-RS-002 Study Website with the friend. The ANAVEX2-73-RS-002 Study Website is designed to delete this information once the information about this ANAVEX2-73-RS-002 Study Website is sent to the recipient via clicking the Submit button. Cookies Cookies are small text files that are placed in the memory of your browser or device when you visit a website and allow that website to recognize your browser or device. Each cookie is unique to your web browser and contains some anonymous information, typically the name of the domain the cookie has come from, the “lifetime” of the cookie and a value (usually in the form of a randomly generated unique number). We collect basic data about your use of our Website through the use of Cookies. A Cookie is a small piece of information that our server sends to your web browser when you access the ANAVEX2-73-RS-002 Study Website. Every computer that accesses the ANAVEX2-73-RS-002 Study Website is assigned a different Cookie. Cookies are capable of storing many types of data. Cookies may be used to help us analyze usage of the ANAVEX2-73-RS-002 Study Website. We do not link basic data from Cookies to Personally Identifiable Information. Most browser software can be set to reject all Cookies. Note, however, that some portions of the ANAVEX2-73-RS-002 Study Website may not work properly if you reject Cookies. For further information, visit ​ Cookies IP Addresses An IP address is a number assigned to your computer/mobile by your Internet service provider so your computer / mobile can access the Internet. Rare Love only collect or store full IP address in Web Logs (please see Web Logs and Google Analytics below). Web Logs Web Logs record basic data about your visit to the ANAVEX2-73-RS-002 Study Website, such as the date and time of the visit, the pages of the ANAVEX2-73-RS-002 Study Website viewed during the visit and IP addresses. Web logs are not directly collected by or stored by Rare Love. Web Logs for the ANAVEX2-73-RS-002 Study Website are processed by a third party company called Jotforms, who hosts the screening questionnaire and are necessary for the purposes of assisting with troubleshooting user issues within the screening questionnaire by parsing the web server logs and displaying relevant warnings and error messages in the interface. We do not normally seek to identify individuals from Web Logs. However, Web Logs may be shared with law enforcement agencies if we believe there has been a violation of computer security or related laws. Google Analytics This website uses Google Analytics, a web analytics service provided by Google, Inc. (“Google”) which uses cookies to help the web team analyze how users use the site. The information generated by the cookies about your use of the website will be transmitted to and stored by Google under their privacy policies: ​ Google: ​ Rare Love utilizes IP address anonymization within Google analytics. The IP anonymization feature in analytics sets the last four digits of your IP address to zeros in memory shortly after being sent to the Analytics Collection Network. The full IP address is never written to disk in this case. Aggregate Data We will combine the Google Analytics and Cookie information your visit will provide with information from other visitors to the ANAVEX2-73-RS-002 Study Website to create Aggregate Data which does not contain any uniquely identifying information. We will share this Aggregate Data with the sponsor of the ANAVEX2-73-RS-002 Study, and/or its consultants. We will periodically analyze this Aggregate Data and use what we learn to make improvements to the ANAVEX2-73-RS-002 Study Website. We may also share this Aggregate Data with our partners to assist them in better designing their websites for clinical research studies. Use and Disclosure We will not collect, use or disclose information of users of the ANAVEX2-73-RS-002 Study Website for any purpose other than those described in this Privacy Policy. If these uses change at any time, we will update the privacy policy on the ANAVEX2-73-RS-002 Study Website. We only use and disclose such information the following ways: ​ SHARING INFORMATION WITH STUDY SITES We may forward Aggregate Data (as defined above) and /or Google analytics information to the ANAVEX2-73-RS-002 Study site running the clinical research study of interest. This is for the purpose of seeing how the site is discovered and navigated and is completely anonymized. For more information on how this is done, please see the Google Analytics section above. AGENTS AND SERVICE PROVIDERS We may contract other companies and individuals to perform ANAVEX2-73-RS-002 Study Website related maintenance functions on our behalf. They may need access to information collected via this ANAVEX2-73-RS-002 Study Website to perform their functions. ​ Third parties that access IP address information may be required to disclose them to comply with a law or regulation, or in response to a search warrant, subpoena, or court order. Disclosures may also be appropriate to protect our legal rights, to protect the security or integrity of the ANAVEX2-73-RS-002 Study Website, to take precautions against liability, or during emergencies if physical safety is believed to be at risk. These types of disclosures are unlikely to occur, but we want you to be aware that they are possible. Links to Other Websites The ANAVEX2-73-RS-002 Study Website may contain links to other websites. Please keep in mind when you access websites operated by other parties, whether through links on our website or otherwise, that we do not control what happens on those websites. You should always check the privacy policy of the website you are visiting in order to be sure you know how the operator of that website will collect information from you and what the operator of that website will do with the information. Data Security and Internet Transmission Risks We acknowledge that no internet transmission is ever 100% secure or error free. We maintain appropriate technical, physical, and organizational procedures to safeguard information collected via this ANAVEX2-73-RS-002 Study Website against unauthorized or unlawful processing and/or against accidental loss, alternation, disclosure or access. It is your responsibility to ensure that the computer / mobile you use is adequately secured and protected against malicious software, trojan horses, computer viruses and worm programs. Without adequate security measures on a computer / mobile, there is a risk that the information you provide could be disclosed to unauthorized third parties. Similarly, despite Rare Love's efforts to protect your information, there is always some risk that an unauthorized third party may find a way around our security systems or that transmissions of your information over the internet may be intercepted. Change Notification As privacy laws and regulations evolve, it may be necessary to revise or update our Privacy Policy without notice. You can determine if this Privacy Policy has been revised since your last visit by referring to the “last updated” legend at the bottom of this page. Your use of our website constitutes your acceptance of the terms of the revised Privacy Policy, and you should therefore review the Privacy Policy regularly to ensure that you are aware of its terms. Please print, save, and retain a copy of the Privacy Policy (and of any revised version) for your records. Access Rights To the extent collected information would allow Rare Love to identify you from the collected information, Rare Love will provide you on request reasonable access to such information. Subject to any legal requirements, you are given a reasonable opportunity to correct, amend or delete information that is inaccurate. You may do so by contacting the Privacy Contact as set forth below. Retention of Google Analytics Information We will only maintain Google analytics Information for as long as we are required to do so for the purpose(s) for which it is processed. Privacy Contact Information Questions or comments regarding this Privacy Policy or our practices, should be submitted to: ​ Rare Love Ventures 10 Schalks Crossing Rd. Suite 501-283 Plainsboro, NJ 08536 United States of America ​ Reservation of Rights Rare Love reserves the right to share an individual’s information as required by law or to duly authorized information requests of government authorities. Last Updated: October 20, 2021 Up

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